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Debra is dedicated to finding a cure for EB, which affects 1 out of every 50,000 live births in the United States today. EB is a genetically based disease characterized by chronic, painful blistering. The skin and mucous membranes are so fragile that the slightest touch can cause severe blistering inside and outside the body.

Present at birth, EB affects men and women of all races and ethnic groups and sometimes, when there is no family history, it occurs as the result of a spontaneous genetic mutation. Today, there is no cure or treatment for EB, except daily wound care and bandaging. Genetic research is making progress towards treatments and a cure.

2014 Benefit Information

Heaven Is For Real

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We are so thrilled to present a special screening of Heaven Is For Real as our 2014 Love For Lucas Benefit! Heaven Is For Real is based on the #1 New York Times best-selling book and starring Cleveland resident, Connor Corum. You and your friends can watch the movie before it hits theaters nationwide and help raise money for Epidermolysis Bullosa (EB) — The Worst Disease You've Never Heard Of. This special screening is dedicated to our son Lucas Patrick Hardman (May 21, 2011-June 24, 2011), who passed away after his courageous fight with the rare genetic skin disorder, Epidermolysis Bullosa. Connor is Lucas' cousin, and we are extremely proud of his feature film debut! We hope that you can all join us for what promises to be a truly inspiring occasion. As always, thank you for all of your continued support and for loving our little Lucas.

WHAT: HEAVEN IS FOR REAL special fundraiser screening for debra of America (in memory of Lucas Patrick Hardman)
DATE: Sunday, April 13, 2014
TIME: 2PM
WHERE: Cinemark at Valley View, 6001 Canal Road, Valley View, Ohio 44125
STARRING: Academy Award nominee, Greg Kinnear, Kelly Reilly, Margo Martindale, Thomas Haden Church, and Connor Corum
To purchase tickets and learn more about the event click here
If you cannot attend the event, but would like to make a donation please click here.

Based on the #1 New York Times best-selling book of the same name, HEAVEN IS FOR REAL brings to the screen the true story of a small-town father who must find the courage and conviction to share his son’s extraordinary, life-changing experience with the world. The film stars Academy Award® nominee and Emmy® award winning actor Greg Kinnear as Todd Burpo and co-stars Kelly Reilly as Sonja Burpo, the real-life couple whose son Colton (newcomer Connor Corum) claims to have visited Heaven during a near death experience. Colton recounts the details of his amazing journey with childlike innocence and speaks matter-of-factly about things that happened before his birth... things he couldn't possibly know. Todd and his family are then challenged to examine the meaning from this remarkable event.
TICKET LEVELS
$15 - Children General Admission (10-and-under)
$25 - Adult General Admission
$35 - General Admission and show your Love for Lucas (your name/company will be listed on the DebRA website)
$50 - VIP Seating (Center 4 Rows of Theater, 75 Available)
$100 - VIP Seat and Signed Book by star, Connor Corum (10 available)
$250 - VIP Seat, Signed Book, and Meet & Greet with star, Connor Corum (5 Available)
$500 - VIP Seat, and support debra of America's EB Nurse, Geri Kelly
$1,000 - VIP Seat, and support sending a medical speaker to debra of America's EB Patient Conference